I wish your wife the best of health. I'm hopeful for a medical breakthrough for a permanent cure for this disease.

Thanks much for your clarification, all I know about this disease is that it's incurable –at least for now- but your main post with what my other friend told me, I started questioning my low education in this area.

I'm so sorry, I have no personal contact with any specialist in the field, and even the one doctor in my immediate family is in another field.

Wishing you and your family all the best.

Salam